November 3, 2007

Dodging bullets

This is a familiar term for cancer patients; it's how we feel each time we go in for a scan, blood work or other diagnostic test seen as an indicator of our status, with good results. It is the sigh of relief exhaled between my wife and I while walking to the elevators from my doctor's office. I don't care how confident, positive or in denial a patient is, there is no substitution for the words, "Everything looks good," from my doctor - who has learned that after hello, the results are the onlty thing we are concerned with hearing about - be they good or not so good.

Cancer may leave your body, but it never leaves your life. In our case, it has not left my body and in fact has more firmly embedded itself with the new tumor and all that comes with it. This last few weeks has been rough on us as we have been dealing with setbacks and frustration with my recovery. I have developed an eye condition called CSR -http://en.wikipedia.org/wiki/Central_serous_retinopathy - that's very annoying at best. It makes it appear as though there is a fluid bubble-type distortion in my right eye with a dark spot in the center of my field of vision. The good news on this is that it is not related to the tumor and will likely clear up on its own. I'll be seeing a specialist for follow up, but am relieved that there is no connection other than that it has likely been brought on by stress from all that is going on.
The left side physical weakness I've been experiencing is likely caused by a cyst which has developed in the radiation treatment area. That's the other irony in that it seems like you're damned if you do and damned if you don't with regard to the treatment protocol you follow. What doesn't kill you will likely cure you in other words! That's an overstatement, of course, but most patients I know will echo that sentiment. My doctor at UCSF said he'd like to give everything time to calm down post-surgery and review the November 29th MRI scan before we decide on a next step, if one is even necessary at that time. I have asked for agreement/consensus on that from my other doctors and unless there is objection or counter-recommendation, it seems to be acceptable - as much as the wait and see course can be, "Comfortable," that is.

And so I continue to practice patience for my recovery and for myself . . . practice, practice, practice. Have I mentioned my wife is a saint? I will let you all know when the sainthood ceremony will take place; I think it may involve large quantities of Margaritas. What doesn't kill you will cure you, right?

7 comments:

John Callos said...

The blog is fantastic. It educates us and provides a more comfortable means for us track your progress and find ways to support you Tom. No matter how close we are to you personally, asking questions about your progress is likely one of the more emotionally-difficult things that many of your friends and family may ever have to do. Your positive attitude always makes this easier, but the blog is a great way to communicate everything, even the minor setbacks from time to time. We all try to put on a strong front for you, but it's normal for the people who love you to be worried. Your courage and bravery in the face of all this is an inspiration to us all. I'm personally thankful and grateful for the time you've invested in the blog. I'll still keep asking you the difficult questions because I care deeply and want to know everything, but now with your blog, I feel much more informed and educated about the situation. With the blog as the background, hopefully I will also be able to ask better questions. So please keep it up and add as much detail as possible. I have never experienced cancer or known anyone as they were fighting cancer, and while I want to be the best friend and constant supporter, I often struggle with what the right thing to do or say may be. Are there a list of questions we should never ask? Are certain questions out of line or off limits? I am sure that others must struggle with this as well. How about a post talking about this Tom? If not all, then I would think that most of your friends and family are similarly concerned and would love some clarification around this. We want to be there for you, support you in any way and continue to love and support you, and we will. But for those of us for whom this is new, I would think that a post on the best way to help, the best way to support and a brief discussion about how you feel about certain questions or topics would help us be there for you, each in our own unique ways.
Stay Strong. TomStrong!

Ted Rhodes said...

Tom. Thanks for publishing this so personal and heart felt blog. I stand at the ready as your backup driver and/or trusty sherpa, should you so need me...And, regarding sainthood, the Universal Life Church used to offer that official status for about 25 bucks, a very good deal indeed, so we might consider that for Anne if they still offer that.

As Woody Guthrie used to say (or so I am told. I'm not really that old, despite whatever Rachel has told you), take it easy but take it,

Ted (Rhodes)

Hathaways said...

Dear Tom,
We feel honored to have this info sent to us. We want to support you in any way we can. Believe it or not this helps me heal with my own experiences with cancer ( my mom and dad- who dearly loved you) Live one day at a time and start each day like its a fresh start..
The Hathaways

ian d said...

Keep up the good work, power to the keyboard if it helps you get through things, and helps us to help you in someway.

Ian D.

kevin said...

Tom,
I have spend the last hour writting a reply for you and this google would not send it because I could not figure out how to sign up for an account. lol, I am honored that you have included me in your blog list, Keep it coming
I am pulling for you and my prayers are always with you and your family. I use to run cross country in high school, and I would always get my second wind at the mile point, and at the one and a half mile point I would have to break through a barrier to get to the sprint to finish the race. You are at the mile point and only getting your second wind. You will finish this race, and win. When is the next century race you are planning for? Set the goals, gather your strengths and go for it. I have one of those saints too,
and when I forget that she reminds me of it. lol.
lets see if this one gets sent. Ya have to be smarter than the computer, I have a long ways to go on that one.
your cousin kevin

Anonymous said...

Tom,

Sorry to read about the recurrance. Love your attitude though. Keep up the fight. LiveSTRONG. My thoughts and prayers are with you.

Anonymous said...

Tom,

WOW, you are LIVINGSTRONG!!! I totally admire you and I am so grateful for meeting you over a year ago at the first Livestrong Challenge Ride!!!

I KNOW God does not make mistakes and that meeting you has touched my life!

I am now caught up on what is going on with you. Thank you for your bravery in sharing your story with me and others. YOU make a difference in our lives! You also inspire me.

I will be in touch and keep doing the GREAT job you are doing with all of your "challenges"!

You and your family are in my thoughts and prayers.

Keli Ann Lawton
Tucson, AZ
Survivorship WARRIOR!